Sunday, May 3, 2009

DS Bloggers at Your Service

If you’ve just had a baby, you may not have time to hang out on the web and leisurely search for blogs about Down syndrome.

Me, well, I did have time on my hands as I waited for my daughter to get through 16 weeks in the hospital, but it never occurred to me that there might be a Down syndrome blogging community. We did have lots of caring friends and strangers dropping off phone numbers for local Down syndrome groups and families willing to be contacted. But, being in the hospital everyday, we didn’t have the energy or the free time for face-to-face relationships.

Once we got home, I felt very much alone. Like any Internet junkie, I hit the web. And there she was, Ella Grace with the Pretty Face dancing around in a video. I sat mesmerized watching this little girl with Down syndrome shaking her booty. I was so encouraged by it that I made my husband watch it too.

After clicking around her blogroll and many others, I came across Jaxson’s Fight. When I spotted his hospital picture in the upper left of the blog header, I knew we were not alone with the agony we had faced in those 16 weeks of hospitalization.

Then I found Little Miss E and saw the Traveling Afghan project get off the ground. I realized that together we can turn this online community into a family of sorts where we can share goodies, information, or even vacation visits.

And so, Down Syndrome New Mama has to have a blogroll... right? Of course it does! I could go out and scoop you guys up, and list you willy-nilly but I thought it would be nicer to categorize the blogs. That way, newcomers can find blogs where they share similar experiences, and blogs where they don’t.

Here are the categories. (If your blog fits into more than one category, pick your preference.)

The Designer Genes Club
If your blog doesn’t fit in any of the following categories, or if it does but you never post about anything related to it, please choose this blogroll.

Double Trouble and Twice the Blessing
If you have more than one child with Down syndrome please pick this blogroll.

It’s a Small World After All
This category is for families with ethnically diverse backgrounds and those raising children with Down syndrome across the globe.

Sweethearts & Fighters
If your child has gone through (or is facing) heart surgery or any other major surgery, please pick this blogroll. This list is also for those out there who are fighting various medical issues on an ongoing basis.

The Chosen Ones
If you adopted or are in the process of adopting a child with Down syndrome, please pick this blogroll.

The Future Is Now
If you are an adult or a teen blogger with Down syndrome, please choose this category. Also pick this blogroll if you are a parent or sibling who blogs on behalf of a teenager or an adult with Ds.

Projects & Resources
Blogs that are dedicated to projects, like the Traveling Afghan project, or are a Down syndrome resource blog, like Down Syndrome New Mama, should choose this blogroll.

How You Get Listed
You can either put your blog address and selected category in a comment on this post, or email it to me. My email address is available in my profile. If your blog or your baby is a newborn (or newly adopted), please let me know so that I can highlight you with a "birth" announcement.

Ok guys, bring ‘em on!

103 comments:

  1. Hi there, its nice to meet you. How old is your daughter? Yeah Jax had a 17 week hospital stay from when he was 4 months to 8 months old. That was our longest stay. Of course we've had many since then and many more to come. Welcome to our community. Are you a new blogger?

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  2. Designer Gene Blog: Please add mine: www.simeonstrail.blogspot.com Btw, I'm loving this blog and will head over to the Ds board on babycenter and share this with them.

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  3. Hmmm we fit into a lot of categories! LOL I'll let you decide. Kennedy is our child with Ds, she has had 18 surgeries. She had Leukemia and Atlanto-axial and Atlanto-occipital Instability among a ton of other stuff (no heart issues though). We are also in the process of adopting a little girl with Ds from Eastern Europe. This will be our first adoption.
    Family blog: http://www.myspecialks.com
    Adoption blog: http://www.aspecialkadoption.blogspot.com
    We also have an e-store with Down syndrome awareness products: http://www.cafepress.com/t21club

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  4. Mommy to those Special Ks ,
    Thankfully you have a blog for almost each category you fit into! One of these days I am heading back over to the t21club to shop until I drop. I LOVE the clothes with the sayings!

    Tara,
    Thank you, and thanks for sharing. The more company we get, the more info we can pass along to each other.

    Lacey,
    I confess, I've blogged before... even visited you before. I just didn't want to tangle the two blogs since the other one isn't really about ds or my daughter, although she makes an appearance on occasion.

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  5. This is such a great blog! We fit into the sweethearts club....baby girl born 7/01/08 with OHS for TOF on 10/23/08...doing great so far!!

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  6. This blog is such a great idea! Where was all this stuff when Morgan was born 6 years ago? I just had to read the one book that was available to me over and over again all about the possible health problems she could have. :)
    I guess we best fit in the sweethearts club. She had OHS for AV canal when she was 4 months old in 2003. It seems like that was so long ago and not anything we think about anymore but she will be happy to be part of that club or any club on here! :) www.sealbark.blogspot.com

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  7. Could you put my blog under Designer Genes please? http://finniansjourney.blogspot.com

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  8. awesome!

    Sweethearts and Fighters: http://thephamilyblog.blogspot.com

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  9. I guess I would fit into the Designer Genes and the Sweethearts and Fighters- our son is due in just under 3 weeks!

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  10. Please file us under The Designer Genes Club. Thanks!

    http://www.smith-smiths.blogspot.com

    If you'd consider adding a category that touches on diversity/being a minority, I think that would be great too. I've receieved some wonderful feedback from people who previously had been unable to find a family online that looked like theirs.

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  11. Thanks for including my blog in the Designer Genes Club. I was going to leave a comment to ask you to add me but I see you already have. I have some posts planned for the future that would mention resources for parents too, but I think the Designer Genes Club suits me just fine. Just being in your blog is awesome! Thanks again!

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  12. Ria,

    I saw your comment on another post with your blog name at the bottom and I guess I just got ahead of myself. I'll be looking out for those resource posts... gotta love resources!

    Chrystal,
    What a great idea. I expanded the description of It's a Small World After All and I'll move your blog there. But let me know if you are not ok with the move and I will put it back. Thanks.

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  13. Howdy! I guess we fit best under Designer Genes, although Kira did have heart surgery to repair her PDA. Kira is 2 (and almost 2 1/2!) and amazes me hourly.

    http://zipperduedeedah.blogspot.com

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  14. Designer Gene Blog:

    http://oppositekids.blogspot.com/

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  15. I would love to be added to the designer genes category. http://outnumberedbykids.blogspot.com/

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  16. I have 2 blogs. Our family blog highlights our TWO boys with Ds, so that'd put us in the "Double Trouble" catagory:
    http://chroniclesofhousehold6.blogspot.com
    Both of my boys were adopted and we're in the process of adopting a 3rd little boy with Ds. Our adoption blog is:
    http://GatheringThemFromTheEast.blogspot.com

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  17. Shelly... Vote in the poll. We need to get those adoptions counted, lol. What you guys are doing is awesome.

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  18. Hi there!

    We're in the "Designer Gene Club"

    www.audreysplayground.blogspot.com

    <3
    Megan
    Mom to Audrey and Stella

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  19. Designer genes for us please : ) I'm so glad you found our blog, it makes me so happy to hear when new mom's see my Ella and are encouraged by her. She is so much more than I could have ever imagined. When she was born and the told me she had Ds I was devistated, we've come a long way and I honestly would not change a single thing about her, she is a daily inspiration to me and pretty much all that meet her, and yet she is SUCH a 2 year old, and all the lovely-ness that comes with it : ) I will definetly be checking in here often, please please post more pics!!

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  20. Designer Genes here as well, directed here by Chrystal!

    http://disposablebrain.com

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  21. What a great blog! Please add our blog to Designer Gene's, although Georgia had heart surgery as well!

    www.unringingthebell.typepad.com

    I wish this existed when I first had our sweetie!

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  22. Hi there! Im looking forward to following this blog : ) My name is Laurie and I have 2 young kiddos - Cassidy is 2.5 and Dylan, my little guy with Ds, is 10 months old. He also has had heart surgery to repair an AV canal defect as well as a surprise defect (which was discovered once his surgery began) called an AP Window. Looking forward to connecing with everyone : )
    http://dayswithdylan-laurie.blogspot.com/

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  23. Add us to the Designer Genes blogroll. Liam is 2 and has DS. I blog about him, his little sister, life in our house, and my knitting.

    http://sharppointysticks.typepad.com

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  24. We would love to join the Designer Genes Club!!! www.trisacharm.blogspot.com :)!!

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  25. Great idea! I fit in the Designer Genes Club category :)

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  26. We fit into the Sweethearts and Fighters (repaired AV canal and PDA, coarctation and residual septal defects waiting to be repaired) and we also fit into The Chosen Ones category, so I'll let you choose!
    Ours was a domestic adoption, rather than international, if that helps.
    Thanks!

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  27. My little Lily is a sweetheart and a fighter. I would love to be on your blogroll.

    www.awalkinlilysgarden.blogspot.com

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  28. you can add our fighting sweetheart too. http://puritanwife.blogspot.com

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  29. This is a great blog idea! Braska would fit in either the Designer Genes or Sweethearts... thanks for doing this!

    braskabear.blogspot.com

    :)

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  30. Our blog, Mutterings & Musings, would fit best in the Sweethearts blogroll. Lucy had an complete AV canal repaired in Jan. 08. The address is www.cremcd.blogspot.com.

    I love this blog! Wonderful job!!!

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  31. We're definitely Designer Genes :-) You have a great new blog! We're at www.monicacrumley.blogspot.com "Monkey Musings"

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  32. ok sign me up, sister. Designer Genes, if you please.
    www.riversofjoy21.blogspot.com

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  33. A new addition to the Designer Genes Club:

    Lisa & Bridget @

    www.bridgets-light.blogspot.com

    Keep up the great work!

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  34. I guess we'd be in the Small world category. ww.shamptons.blogspot.com

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  35. Designer Genes Club please!

    http://jeramydancyandjack.blogspot.com/

    I love what you're doing with the blog...much needed!

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  36. Designer Gene blog
    www.livinforthelove.blogspot.com

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  37. We would be in the Designer Genes Club.
    http://princesstawni.blogspot.com/

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  38. Great blog!!

    Please add us to the "Sweethearts and Fighters" category. My Benjamin (4/24/08) had OHS to repair an ASD and a VSD on Oct 3, 2008. He also had intestinal surgery to repair a duodenal webbing (obstruction) on Jan 13, 2009.

    My blog is www.theamicks-angela.blogspot.com

    Thanks!

    Angela

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  39. Thanks so much for adding my blog here under the Twice the Blessings" heading. I have certainly been doubly blessed with my 4-year-old identical twin boys who were, themselves, blessed with an extra 21st chromosome. I LOVE this blog. Can't believe I've never happened upon it before though... as you said... there's not always a lot of time (x2). I'm a loyal fan as of today. Thanks for sharing!

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  40. I'm not sure where I'd fit - and I blog about more than Ds. My sweetheart Eliana has Ds. She had open-heart surgery at 4 months. She is doing great now though!

    My blog is about our family and whatever is going on at the time. I started my blog to focus on Eliana and the first year or so was mostly about her. As life became a little less chaotic, we've added back other activities that just weren't possibly when she wasn't strong and healthy.

    Looking forward to reading more of your blog!

    Blessings
    Leslie
    www.homeschoolblogger.com/LeslieNelsen

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  41. THe designer genes club: http://raisingmylolo.blogspot.com

    sweethearts and fighters: http://raisingmylolo.blogspot.com

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  42. Hey there! Can you list us under "It's a small world"

    We are hapagirlhapafamily.blogspot.com.

    And if you don't mind I can add you to mine.

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  43. I have a huge favor to ask....I moved Mutterings & Musings from www.cremcd.blogspot.com to www.cremcd.wordpress.com. I was hoping you could update your blogroll when you get a chance. We're listed in the sweethearts section. Thanks, so much!! :)

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  44. We difinitely fit into Sweethearts and Fighters.. please add us.
    The Life and Times of a Woman on a Mission.blogspot.com

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  45. Awesome blog!

    Our little girl will be born on Aug 4. Along with Ds she has a complete AVSD. The Ds blogging community has been such a comfort to me. This is the kind of stuff you wish you could find in a book store.

    Please add my blog to Sweethearts & Fighters:
    http://kaitlynskorner080409.blogspot.com/

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  46. New addition to the Designer Genes club please!

    http://taylorvillethree21.blogspot.com

    Indiana momma to three boys (including fraternal twins who just turned 2) and one of my twins has T21. Thanks for adding us!!

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  47. Could you add me to your designer genes club blog roll. thanks so much. I love your blog!!!

    http://coloradomamato3.blogspot.com/

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  48. Great blog! I will definitely be checking back in. You can add us to the Designer Genes Club :) http://annabananapants.blogspot.com/

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  49. Awesome blog. Already used the toy list. Pleas add us to the Designer Genes Club. Thanks

    http://4wysdom.blogspot.com/

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  50. Sorry actually can you put me under the Sweethearts and fighters group. Didn't see that at first.

    http://4wysdom.blogspot.com/

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  51. This comment has been removed by the author.

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  52. Amazing! I finally found a Ds blogging community. Please add us to your Designer Genes Club. Thanks!

    www.thehaskinclan.blogspot.com

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  53. Hi--I guess we would fit into the its a small world category. I'd be honored if you'd add my blog A Beautiful Life to your blog roll. Thanks. http://muslimmamadsblog.blogspot.com

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  54. Hi, I really love this blog!
    If you could please add us under the designer genes club that would be great!
    bradyandmadi.ebsquared.com

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  55. I am under sweethearts and fighters under http://4wysdom.blogspot.com. Can you check why my link doesn't upload and list my new posts-thanks a bunch

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  56. Hi, there! Could we be on your blog roll, too? Maybe on Sweethearts & Fighters, since we'll have upcoming OHS and continuing Gtube adventures...We'd qualify for The Chosen Ones, too...your choice!

    Thanks!!
    Little LC Boom Boom
    http://lcgrace.blogspot.com

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  57. Hi again! Could you add us to your Designer Genes Club? Of course we could fit into the Sweethearts and Fighters Club too. You can decide if you wish.
    Carly has Ds, she has had 2 heart surgeries and will likely be having another. She still has some heart issues going on, but they are just monitoring her for now. She also battled leukemia. She received chemo for 26 long agonizing months. All of this occurred by the time she was 2 1/2 years old. She is now 7. In remission since 2 weeks of diagnosis!!
    Thanks.
    ABandCsMom
    http://abandcsmom.blogspot.com

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  58. Okay I could be The Chosen One or The Future is Now. We are also in the business of helping. I've been on the state board of the Utah Down Syndrome Foundation since 2002, the state president for the last 3 years. Adopted Lily at birth - she is my "Pure Joy!" And now we have our brand spanking new website. After blogging for a few years we think we can do more. You have a great site!

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  59. Hi
    I really love your blog !
    We would love to be in the Designer Genes Club


    http://just2ofakind.blogspot.com/

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  60. I think we fit into the Designer Genes category. www.DownRightFaith.com/weblog Sydney is 2 years old and was three weeks early with 3 holes in her heart and pulmonary hypertension. We helped to contribute to the scary 50% heart defects category, but were like many who recovered without surgery. This is one of the many reasons that new parents need resources that are not just medically based. I run our Assoc's New Parent Program so may have additional resources for you. I'd be glad to contribute if you want.

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  61. Hi we love this blog we would love to be in the The Designer Genes Club our blog is http://21diamonds.blogspot.com/

    Love from Iceland

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  62. Sweethearts and Fighters! Kristen is both. 3 time cancer survivor and a sweetheart at 23 years old.

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  63. Hi ds.mama!
    We finally got our blog up and sort of running-
    thetaooftulips.wordpress.com

    Abby is 6 mos old now- probably too old for a birth announcement though :0 I don't know how all these amazing mamas get their blogs up with newborns! The Designer Genes club please-

    Nicole & Abigail

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  64. I'd love it if you added our blog under The Designer Genes Club.

    imdownwithdowns.blogspot.com

    My son (aka The Boy) will be 11 months this week, and my sister's daughter (aka Mermaid) will be 2 in December. Another sister of ours had a daughter with T21, too, who passed away 6 years ago. The three of us author the blog together.

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  65. Hello! thank you for this opportunity...I have been searching for others with my struggles and to help give me hope...I have just started blogging and would love you to help get it out...I am not sure what it should go under...it is about my personal trials of being a mom of a daughter with Down Syndrome...it is an HONEST look..and not always pretty..so do what you think is best...chromosomallyenhanced21.blogspot.com

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  66. Hello, I want to give some hope to you new Mom's. I have a 23 year old daughter that has DS and she has been a real encouragement and joy to my life. She is a self advocate and is on our local board of directors. She has also been in a dance troupe named Company d for 8 years. Company d is an awareness group to change society's perceptions of people with DS. Company d performs locally, regionally and nationally. They were invited and performed in Central Park, New York City. I would encourage you ladies to start projects like this one in your areas. Most of us parents have been together since our kids were born and are still friends. Please take a look at our website www.companyddancers.com or you can see a documentary that is in progress that was shown at the On Location International Film Festival http://www.blip.tv/file/2111134/. As you will see your child can have a full and exciting life. You just have to be committed and keep them involved. I wish you all the best.

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  67. I'd like to add our blog under "Designer Genes" although we did OHS too.

    www.celebratinglifeasweknowit.blogspot.com

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  68. Hi, I'd like to add our blog under It’s a Small World After All.
    Our blog is:
    www.asuperbaby.blogspot.com

    I don't wright a lot because I am busy with my son, family, job, etc. I love your blog it is very helpfull for me. Thanks for your dedication!

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  69. You can add me!

    http://yomammamamma.blogspot.com/

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  70. Lovely blog! Mine is www.thepoppiesblog.co.nr and my art business, which advocates for DS and Reece's Rainbow is www.poppiesblooming.co.uk

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  71. I would love for you to add my blog.
    www.gwenolivia1.blogspot.com
    Thanks!

    I'm not sure how to categorize it.
    My daughter has been through multiple surgeries,but I didn't post much about them.

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  72. I would love to be listed www.bostonclarkbutler.blogspot.com
    Boston was born 10 weeks early and was diagnosed with DS at 7 weeks of life.

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  73. Hi Kelly - Congratulations on Boston joining your family! My guys were 8 weeks early and diagnosed with DS at birth. The beginning of a joyous ride. Enjoy!

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  74. Hi ... just came across your blog. :) I'd love to be listed ... I guess we fit in a few categories, so I'm not sure. :) I have a bio daughter with DS and we also adopted a little girl from Russia that has DS. So ... here is where we fit ...

    Double Trouble and Twice the Blessing
    The Chosen Ones

    Thanks!

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  75. Okay, so I've been following your blog for a long time-- when you started, we were still waiting the arrival of our little girl, who we knew had Ds. She surprised us in May, showing up 8 weeks early.

    I have to say-- I always look forward to your posts! :)

    I didn't start my blog until a couple months ago-- can you add it to your list? Thanks a million! Some of my favorites I've found through you!

    Aimee
    aimeesbowlofcherries.blogspot.com

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  76. Hi there, I love your blog and have been following for a bit now. I too have started my own blog and would love to be added to your blogroll. We fit into a few of your categories, but maybe we can go into the "Designer Genes Club". Our site is http://welcometoourhouse-myjournal.blogspot.com Thanks so much for having your site!

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  77. I too have been following your blog (which has become a such a great place full of resources for my family). I finally decided to start blogging this past October to give back to this wonderful community as it had helped me tremendously. Landon will be turning "1" this month, the 11th. We would love to be added to your blogroll......the "Designer Genes Club" please:) http://welcometolandyland.blogspot.com/

    Thanks so much for sharing such valuable information!

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  78. Love your blog. We would love to be part of the sweethearts and fighters club!
    http://www.kangcrew.blogspot.com/
    Thanks!

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  79. I love your blog and all that you offer. I just started blogging as a way to decompress after 16 months of emergency surgeries and hospitalizations. I have a 17 month old son Jacob with Down Syndrome. Please add my blog to your roll! http://ourspeciallifewithneeds.blogspot.com/

    Please add us to sweethearts & fighters!!

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  80. What a great idea! I can't believe that it has taken me this long to find your blog -- I have been reading every book under the sun since my son, August was born in May. I started a blog recently about our life and I would love to be added to your blogroll:

    http://lostreshijos.blogspot.com

    We would fit into sweethearts & fighters (August will have surgery in May) and designer genes club.

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  81. Hi! Can you add me to The Designer Genes Club? Jesenia joined her two brothers on January 21, 2010. She was five weeks early and we found out the day after she was born that she has Down Syndrome. Here's my blog address: http://mmb-unscripted.blogspot.com

    Thanks! Melissa

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  82. Would love to be added as well.

    We have a bio daughter with Ds, and we adopted through RR, although a little girl with CP.

    www.elliestumbo.blogspot.com

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  83. Can you add me to the Designer Genes Blogs? beccajacobsen.blogspot.com My ninth child is sporting an extra chromosome and is such a blessing to us all! Thanks for doint all this!

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  84. Hello Moms! I have a 25 month old sweet baby boy named Evan. Eating is our biggest challenge. Evan still takes a bottle and cries at the site of a sippy cup. Evan also will not eat anything that you hand him or try to feed him. He eats cheerios and crackers and stage 2 baby food. His tongue is still his main source of eating .. he doesnt really chew he pushes around his mouth. I need some advise on the bottle and the eating! I try so hard to get him to try stuff but he turns his head and pushes it away..

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  85. ok i now have a blog name! I love this site

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  86. i would fit the category the future is now, i was 20 when i was pregnant with seany and delivered at 21, he was born september 16, 2009 7 lbs 14 oz, 19.5 inches! he was a big boy and they thought he was going to be around 6 lbs! He needs baby glasses already and we are doing for surgery on tuesday for his hearing, it will be about 2 hours long to determine why he keeps failing his hearing test but he can hear! He talks up a storm already saying mom mom ma or dad da da or ba ba ba and a bunch of baby jibber jabber! I would love if anyone is or lives in PA to contact me i would love to meet a young mom to play with seany and get our kids!

    lauren <3

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  87. I think we would be in the designer gene category or the sweethearts and fighters. whitney did have a feeding tube for the first five months of her life and had open heart surgery at 3 months old but she is doing great now! (almost two yrs old)
    you have created such a wonderful blog!!!
    our blog address is:

    http://www.acbyron.blogspot.com
    anne & whitney: up down and all around

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  88. I would love to be added to the designer genes category. Jacobandemilyadams.blogspot.com

    My blog is private so I will need to send you a invite.

    I love your blog.

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  89. Thanks for all the work you've done with this blog! Could you add me to the Designer Genes category? My little guy is 5 months old, but wasn't diagnosed with DS until almost 3 months. It's been a crazy journey, as you well know...!

    http://diaryofazookeeper.blogspot.com

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  90. I guess I would go into the designer genes category because we just write about our beautiful life. http://kristadawne.blogspot.com

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  91. Hi DSMama, thanks for all you are doing to bring together and support the Ds community. We would be honored to have our Blog "Deedah and Me" listed under your Project category.

    My wife, Brooke, directed and shot a documentary interviewing our daughter about what it is like to have a little brother with Ds. It is ideal for children and parents new to Ds.

    We blog about the kids and general silliness at www.deedahandme.com/blog.

    I would love for you to pick some random readers that I can give a copy of the film to. Email me at mayp1965 at gmail to coordinate.

    thanks again, Phil

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  93. Hey I am a new DS mama too. We have a six month old and I just started a blog to share pics of his life! Ill just post it in case anyone feels like meeting our sweet little ty.

    matchinskys.blogspot.com/

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  94. Hi - Mama with 5-years experience now raising identical twin boys with Down syndrome.... Need an update: Can I bother you to please change my url on your Double Trouble/Twice the Fun blogroll? I've moved from blogspot to wordpress so please replace walkonthehappyside.blogspot.com with walkonthehappyside.wordpress.com. Thanks much.... for all you do!

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  95. Hi this is an amazing site! I am so glad you and so many others have come together to list so many. Please add my wife's blog to The Designer Genes Club.

    www.particularlyperfect.com

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  96. Hi thanks for all the great info on DS, my son was born 4/27/2011 and is still at Riley Hosp. in Indianapolis, he has AV canal defect and DS.
    He is currently having some respiratory issues and we are praying to finally take him home in a few weeks! I guess we would be in the sweethearts and fighters club, so here is my blog addy:http://daisyturtletales.blogspot.com/
    thanks alot, Ginger

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  97. Thank you for your blog! We love the DS blog family. Please add ours to sweethearts and fighters - Grace gets her surgery next week. http://talesfromgraceland.blogspot.com. Thank you!

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  98. Hi Can you please add me to "The chosen ones" and "Designer Genes club". My blog is new. The blog is www.adoptionisloveinmotion.blogspot.com Thanks so much!

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  99. Hi ds mamma, i am sooo delighted by your site! God Bless you for all the amazing info you have in here. Can you plz add me to your blog, im not even sure which one tho! I have four sons all born normal and my fifth son born on the 4th of Jan 2012 is the most beautiful ds baby in the whole world!! I just treat him like a normal baby as he looks and acts so normal. But the blood results dont lie. Plz help me as I need to learn everything I can. Everytime he is awake, I scoop him up and just cant seem to put him back down!

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  100. It is our high honor to serve many, many parents of children with DS. Our specialty is offering parents hope and encouragement for this endurance race. And our blog, which may fit well under "Projects & Resources" can be accessed at: http://comfortinthemidstofchaos.blogspot.com/ Blessings!

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  101. Hi there... Great blog! Lots of neat and informative stuff here. Just started my own blog as we had a prenatal diagnosis and are expecting a baby boy with Down syndrome this November. Could you please add me to the Designer Genes Club?
    www.dyasfilledwithsunshine.blogspot.com
    Thanks!

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  102. Our 9th baby was diagnosed at birth with Ds in April of 2013. We have been blessed by him and Ds since the first. I couldn't imagine life without Addison. How I wish I had your blog back in those first days. Addison "Henry" will be 1 in April and we have learned so much but when we first navigated the internet it was not our friend. There was so much information... lots of good, lots of bad. I am still learning and researching. As a matter of fact I ended up here researching TNI.

    You could add our blog ArtsChiliPepper.blogspot.com to your designer gene blogroll.

    Thanks,

    Kathleen

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