Tuesday, September 22, 2009

My Inspiration

I try not to make this blog about me and mine but this week is an exception. September 24th marks the anniversary of my daughter’s open heart surgery.

My baby was born with two major heart defects. She spent 17 weeks on the ICU front lines. She is a warrior, and the toughest baby on my block. Today I am thankful that her health is perfect.

For this week only I am going to put aside my shyness and invite you to come meet my baby girl and the rest of the gang.

10/13/09 Update
If you missed seeing the video, it will be back next year in Sept.
Posted by ds.mama at 3:39 PM
Labels:

33 comments:

  1. TaraSeptember 22, 2009 at 5:59 PM

    Thank you for sharing! She is one tough cookie and has the most beautiful eyes! Eon watched the whole thing with me - I think he's in love! :)

    ReplyDelete
  2. LaceySeptember 22, 2009 at 6:02 PM

    Thanks for that look into your life. Jax was in the hospital for 17 weeks, 117 days too. Our crazy kids.

    ReplyDelete
  3. RochelleSeptember 22, 2009 at 6:15 PM

    Thanks for sharing, she is beautiful. What a great blessing. Celebrate, celebrate, celebrate!

    ReplyDelete
  4. AngelaSeptember 22, 2009 at 6:31 PM

    Beautiful video! October 3 marks the one-year anniversary of my Benjamin's open-heart surgery. He had two defects at birth but thankfully never had to spend any time in the NICU when he was born. He had his OHS at 5 1/2 months and only spent about a week at the hospital.
    Your little girl is so precious and such a fighter. I truly do believe that God not only gave our kids an extra chromosome but also a little extra something to deal with all the curveballs life throws at them.

    ReplyDelete
  5. MrslalaSeptember 22, 2009 at 6:33 PM

    Thank you for sharing...I am bawling. She is so beautiful! I just can't get enough of those big georgous eyes.

    ReplyDelete
  6. KristinSeptember 22, 2009 at 6:36 PM

    Beautiful - thanks. We feel so lucky - 3 weeks post OHS and only had to spend 6 days in the hospital.

    ReplyDelete
  7. BethSeptember 22, 2009 at 6:47 PM

    Oh what a journey, and what love in your family! That was beautiful. Thanks for sharing. She is amazing!

    ReplyDelete
  8. AnonymousSeptember 22, 2009 at 6:57 PM

    Thanks for sharing!! Summer is so beautiful. What a journey you have all been on in such a short time!!!

    When Lucy had her one year anniversary we through her a Happy Heart Day party, complete with a cake! It is truly a reason to celebrate!!

    Happy Heart Day, sweet Summer!!!!

    ~Courtney

    ReplyDelete
  9. The Sanchez FamilySeptember 22, 2009 at 7:24 PM

    What a special treat. Thank you soooo much for sharing. She is amazing. And she is GORGEOUS! Her eyes, her sweet cherub face! She is just lovely. Happy Day!!!

    ReplyDelete
  10. UnknownSeptember 22, 2009 at 8:50 PM

    You and your family are amazing...thank you for sharing a peek into your world...Summer Rain is beautiful...congrats on the big milestone...

    ReplyDelete
  11. To Love EndlesslySeptember 22, 2009 at 9:04 PM

    Thank you for sharing! Summer is absolutely gorgeous (I love her eyes, they're gorgeous) & very blessed to have a mommy & daddy that love her so very much!

    ReplyDelete
  12. Catherine JustSeptember 22, 2009 at 9:09 PM

    this was SO touching. Brought tears to my eyes. Thank you so much for posting all of these images and the story of your adorable baby. Amazing. Powerful. Touching.

    ReplyDelete
  13. AnonymousSeptember 22, 2009 at 9:14 PM

    Oh my, this made my heart sing tonight. Summer Rain, a perfectly fitting name for such a gorgeous little miracle. She is absolutely adorable. Hugs.

    ReplyDelete
  14. Sara PSeptember 22, 2009 at 10:42 PM

    oh my, she is so sweet:) beautiful eyes, thanks so much for sharing... you have a beautiful family... and a very very strong little girl:) God bless.

    ReplyDelete
  15. My name is SarahSeptember 22, 2009 at 10:50 PM

    Very nice video. It brings back such memories of years long ago. Hard to imagine what our little ones live through. Sarah was so excited to that Mickey and Minnie came for a visit.

    ReplyDelete
  16. LisaSeptember 23, 2009 at 12:02 AM

    What a huge day of celebration for you! Wow, that was a rough start. You are all warriors, even though the youngest has the face of an angel :). Congratulations on such a big milestone, and thank you for sharing this important piece of your own story!

    ReplyDelete
  17. MonicaSeptember 23, 2009 at 1:04 AM

    Truly beautiful, thank you for sharing something so personal! I heart summer!!!!!!

    ReplyDelete
  18. Sasha@ BlyssfulhealthSeptember 23, 2009 at 1:58 AM

    She is so cute. What a fighter she is. I love her eyes and her skin looks so beautiful. Tears came to my eyes watching all that you had to go through, espeically giving her away for surgery. It definately also brought back memories. Congrats on the one year post surgery. Way to go Summer Rain.

    ReplyDelete
  19. chSeptember 23, 2009 at 11:22 AM

    Such a stunner...you have so much to celebrate, Tough Stuff!!!

    Thanks for the peek in...absolutely breathtaking.

    ReplyDelete
  20. SSeptember 23, 2009 at 1:05 PM

    WoW that was the most beautiful 13 minutes:) Love her name, it is so perfect in every way. Thanks for sharing! Shame on you for hogging her all this time. :) Cant wait for more:)

    ReplyDelete
  21. rickismomSeptember 23, 2009 at 5:48 PM

    WOW what a journey!

    ReplyDelete
  22. CarrieSeptember 23, 2009 at 10:02 PM

    What a beautiful video--we are almost 6 months past the NICU stay and 2 months past OHS--so these memories are still pretty fresh. Our little ones are truly amazing!

    ReplyDelete
  23. Monica CrumleySeptember 23, 2009 at 11:59 PM

    Wow, thank you for letting us meet you and your family. Your daughter is an amazing little girl for going through so much in such a short time. I love her name. You have a beautiful family!

    ReplyDelete
  24. shereeSeptember 24, 2009 at 12:04 AM

    wow. That really takes me back...and our OHS was only 7 weeks ago. Our kids are absolutely amazing and such heroes!!

    ReplyDelete
  25. AnonymousSeptember 24, 2009 at 12:25 AM

    Thank you, Thank you, Thank you! Thank you for this amazing blog, thank you for introducing yourself and your beautiful family. My fourth daughter was born 8-2008 and diagnosed w/Down Sydrome the following day. Not to share my story here, but it has been an emotional road for me. I have read this blog and several others listed for sometime now and have reached a point were I am ready (and want) to become a part of this great community of people. This bolg and the others I read have been an inspiration and source of hope when I felt like my family and I were alone in this. Thank you! Andrea Wiley, CA

    ReplyDelete
  26. AnonymousSeptember 24, 2009 at 6:10 PM

    This still brings tears to my eyes, this was such a difficult time for all of us, DSMama, your family loves you deeply and Summer Rain is truely blessed to have a mother like you.

    DSPappa

    ReplyDelete
  27. StephanieSeptember 25, 2009 at 1:46 AM

    Thank you so much for sharing your daughter's story. She is such a strong little girl and such a blessing to the world. I really enjoyed that quite a bit and yes it made me cry :)

    ReplyDelete
  28. ColeSeptember 25, 2009 at 12:06 PM

    Oh no! I missed it- it looks like the content was taken down!Well- from everyones comments you have a lovely family and an amazing little warrier. And how sweet to see Ds Pappa comment :)

    Cole- The Tao of Tulips
    (for some reason I always have trouble posting a comment here)

    ReplyDelete
  29. AnonymousSeptember 25, 2009 at 10:30 PM

    I cried through the whole thing, she is so pretty! I read your blog every couple of days you are my go to for upbeat and postive info. My son is 5mts old now and its been nothing that I expected and I mean that in a good way.Lovely child and Lovely family....thank you thank you

    ReplyDelete
  30. AnonymousSeptember 27, 2009 at 8:06 AM

    My son, Gabe and I watched the video. It was hard for me to keep the tears at bay. The heart surgery images took me right back to Gabe's time when he was six months old.

    Summer Rain, like mom and dad, is strong and willful and beautiful! She has the most deep, soulful eyes! Her brothers are sweet, too. :)

    Congratulations Summer on this day of being healthy, happy and here with us!!!♥♥♥

    ReplyDelete
  31. Far Above RubiesSeptember 27, 2009 at 8:07 PM

    Sandra, what a blessing to share your life with us. You are amazing. Congratulations Summer Rain. xoxoxoxoxox

    Jasmine

    ReplyDelete
  32. LaurieSeptember 28, 2009 at 1:58 PM

    Thank you so much for sharing your beautiful little girl with us! She is truly AMAZING! What a journey...

    Ah, we are quickly approaching Dylan's OHS anniversary date as well...how fast time goes by.

    ReplyDelete
  33. sasboltonOctober 5, 2009 at 9:54 PM

    Thank you for sharing your inspiration with us! What a blessing Summer Rain is... You have a gift of sharing her story!

    ReplyDelete

Please share your experience and opinions, or ask a question. I won't even mind if you correct me on something.

ds.mama will delete any comments that are simply product advertising.

Subscribe to: Post Comments (Atom)