tag:blogger.com,1999:blog-5751462964274808617.post8790489860475351364..comments2024-03-29T01:58:11.152-04:00Comments on Down Syndrome New Mama: Breastfeeding Your Baby with Down Syndrome - Part Twods.mamahttp://www.blogger.com/profile/08631570001473985562noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5751462964274808617.post-74027252322447688042013-08-03T21:24:15.601-04:002013-08-03T21:24:15.601-04:00I wish I had more encouragement when my Charles wa...I wish I had more encouragement when my Charles was a newborn. His heart issues and low tone made it difficult and everyone thought I was nuts to not just put him on formula. I pumped for four months, he never really latched on and my milk supply was getting very low (because I was pregnant...again!). I'm glad he got those four months of breast milk, but I wish it had been more. Fourteen years later, it still bugs me.Amy JD Hernandezhttps://www.blogger.com/profile/15540564257426033402noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-44278911844024349822012-06-19T17:50:11.372-04:002012-06-19T17:50:11.372-04:00We didn't discover my son has DS until he was ...We didn't discover my son has DS until he was 4 months, and we had issues BFing. It took me 8 weeks before I got a good latch but I used a nipple shield, a pump and lots of patients. I'm so proud that we got through the obstacle, and knowing he now has DS it makes sense. I'm glad to hear people don't give up! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-75273436104449839492012-05-22T09:11:05.006-04:002012-05-22T09:11:05.006-04:00This comment has been removed by a blog administrator.Herrypontinghttps://www.blogger.com/profile/02951858056059464015noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-62176990459328951372012-05-03T11:31:57.417-04:002012-05-03T11:31:57.417-04:00I've breastfed Jack for 19 months so far, him ...I've breastfed Jack for 19 months so far, him having DS has never been an issue!jennynoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-28855620815870129702012-03-25T15:33:07.396-04:002012-03-25T15:33:07.396-04:00Thank you for these posts. I wish I'd worked ...Thank you for these posts. I wish I'd worked harder to get Claire nursing and hope these posts provide the education and resources others needs to get their babies nursing!Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-42934707861559615242012-03-21T11:48:06.489-04:002012-03-21T11:48:06.489-04:00One of the most important things one NEEDS to be s...One of the most important things one NEEDS to be successful at breastfeeding a baby with Down syndrome, especially a seriously medically challenged one, has nothing to do with the act of feeding but with expressing breastmilk: a hands-free bra! To keep up milk production and keep up a "natural" rhythm for oneself, pumping needs to be supported and the best way to make it easy to double pump is to have your hands free while capturing your milk so you can feel supported, productive and not trapped. Also, be assertive and sure of yourself and work closely with the nurses and lactation people in the NICU to ensure no milk is wasted and that you get a chance to try breastfeeding as much as possible, and always before other methods of nutrition are provided. It helps to have a husband who believes in you and who will support your efforts, even if it requires superhero efforts, as described here: (http://myupside.wordpress.com/2011/03/31/oldmilk/)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-23393878847435092802012-03-14T03:22:40.102-04:002012-03-14T03:22:40.102-04:00My little love was in the NICU for 3 months and th...My little love was in the NICU for 3 months and then was literally on her back for another 3 until her AV Canal was repaired. I pumped that entire time. Fed her through her g-tube, my milk with supplemental, until she had her repair. The nurses and doctors thought I was crazy to think that she would breastfeed after nothing oral for 6 months. and the fact that she had Down syndrome. Boy did she prove everyone wrong, as she has done for the last 5 years. She BEGAN nursing AT 6 months of age, outside the Ronald McDonald House,in the car, after being discharged after her surgery! She continued nursing until she was diagnosed with leukemia at 19 months of age.Sadly,the chemo changed everything.<br /><br /> But I am here to tell you, and our children are here to say, they will do things in their own time, with the help of the magic in that extra chromosome. We know it, our children know it, why is it the outside world just does not get it? No matter. We will keep talking until everyone listens.<br /><br />Great little series. Thank you for it. So important for new moms who need the support.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.com