tag:blogger.com,1999:blog-5751462964274808617.post1327759869413047161..comments2024-03-13T07:49:23.498-04:00Comments on Down Syndrome New Mama: The Welcoming Committeeds.mamahttp://www.blogger.com/profile/08631570001473985562noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-5751462964274808617.post-57620774244728550492009-05-30T19:31:15.482-04:002009-05-30T19:31:15.482-04:00Libby at Blessingsandglory.com offers a free book ...Libby at Blessingsandglory.com offers a free book of Roadmap to Holland and/or Gifts for anyone with a prenatal or postnatal diagnosis of Down Syndrome.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-40088053651031537552009-05-21T11:42:38.670-04:002009-05-21T11:42:38.670-04:00Oh, what a wonderful and caring and loving post......Oh, what a wonderful and caring and loving post...thank you for writing, and for the actions behind the writing. <br /><br />When I was working on the book, I had in my mind a woman, a new mother who'd just found out her baby had Down syndrome. I sometimes wondered if my words to her could make any difference (what are words worth?) but I wanted to try, anyway. <br /><br />Your words show me it was the right choice. <br /><br />xojennifergghttp://www.jennifergrafgroneberg.comnoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-91008956291035691152009-05-19T16:58:00.000-04:002009-05-19T16:58:00.000-04:00Sandra, I too was given this poem when Nathan was ...Sandra, I too was given this poem when Nathan was born and wasn't a fan but I believe that was because the timing was all wrong. I could have cared less at that point in my life. To this day, I've yet to read the Roadmap to Holland but will pick it up over the summer. <br /><br />I really have to commend your writing skills ~ I love reading well written thoughtful work. <br /><br />I'm trying to catching up on your posts! Hopefully, we'll see you next week at playgroup. <br />Kandi & NathanMichael's Loving Familyhttps://www.blogger.com/profile/02495958107869694990noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-56534956561181074642009-05-15T22:42:00.000-04:002009-05-15T22:42:00.000-04:00I feel the same way about the poem! I think my ne...I feel the same way about the poem! I think my negative feelings about the poem have been keeping me from reading Roadmap since it has Holland in the title. I may try to get a hold of it and leave some copies at the hospital too. Great suggestion. And...great blog - thanks for writing.Lisahttps://www.blogger.com/profile/08448914566341927497noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-90404169047801511532009-05-15T13:13:00.000-04:002009-05-15T13:13:00.000-04:00Love this post, love the idea of leaving gifts for...Love this post, love the idea of leaving gifts for new moms. My sister sent me "Roadmap" and brought the book "Gifts" to the hospital - both were so hugely helpful to me as I was starting to learn about my son's diagnosis.Sharonhttps://www.blogger.com/profile/17574042485403799310noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-29022207880884197842009-05-15T01:14:00.000-04:002009-05-15T01:14:00.000-04:00I have YET to hear of a parent who likes how they ...I have YET to hear of a parent who likes how they were told (except one....there the doctor held and stroked the baby when telling the parents, giving over the non verbal message, that this is a child to be loved). The news is so devastating to parents, that we find it hard to accept.rickismomhttps://www.blogger.com/profile/07817042750959998664noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-56401898328260805352009-05-13T22:39:00.000-04:002009-05-13T22:39:00.000-04:00Such a great post! From one Ds Mama to another, y...Such a great post! From one Ds Mama to another, you're doing a great job!<br /><br />Tammy and Parker<br />www.prayingforparker.comParkerMamahttps://www.blogger.com/profile/02699831003510100066noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-22167776909774069652009-05-13T10:20:00.000-04:002009-05-13T10:20:00.000-04:00one month ago our son was born. We too found out ...one month ago our son was born. We too found out while in the NICU that Adam had Down syndrome. This post really hits home to me. The feelings are still so new and still raw.<br /><br /> I have just started reading road map to Holland. (as well as blogs like yours) and Its made me realize I am not alone. And more importantly we have so much to look forward to!<br /><br />Thank you!!!!Triciahttps://www.blogger.com/profile/02657213586313349118noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-12558204466722447162009-05-13T10:18:00.000-04:002009-05-13T10:18:00.000-04:00What a great blog! Thank you for taking the time t...What a great blog! Thank you for taking the time to make it! And thank you for adding our blog to your blog roll!Karl and Ashleyhttps://www.blogger.com/profile/17487660694586971793noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-5290655171845775122009-05-12T18:43:00.000-04:002009-05-12T18:43:00.000-04:00Thank you for sharing this great gift bag idea. I ...Thank you for sharing this great gift bag idea. I will have to do this. Like Lisa, Matthew's diagnosis was an after-birth surprise too. But there was no gift bag like this waiting for me. Instead there were handouts, more factual information about Down syndrome, and information about the local Down syndrome association. At that point, our emotions were still raw and we weren't ready to read more facts. I might have been more willing to read Road Map to Holland or Gifts, which my mother-in-law found for me a few weeks after we got home. Those two books were my lifeline.Riahttps://www.blogger.com/profile/06737298798388579270noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-18411282856425512332009-05-12T18:35:00.000-04:002009-05-12T18:35:00.000-04:00Thanks Cathy. I have updated the link to point to ...Thanks Cathy. I have updated the link to point to Libby's free book post.ds.mamahttps://www.blogger.com/profile/08631570001473985562noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-24032739878157876002009-05-12T18:06:00.000-04:002009-05-12T18:06:00.000-04:00Just thought I would let you know that Libby from ...Just thought I would let you know that Libby from "Blessings and Glory" is giving Roadmap or Gifts away to parents with a new diagnosis.<br /><br />http://blessingsandglory.wordpress.com/Cathyhttps://www.blogger.com/profile/06533628798558130274noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-30710075288500216642009-05-12T17:47:00.000-04:002009-05-12T17:47:00.000-04:00You recently came by my blog and read my daugther'...You recently came by my blog and read my daugther's birth story and your comment was precious to me. Thank you.<br /><br />I heard about Jennifer about one year ago through Blueberry Eye's blog. I ordered the book and read it - all the while crying. It was the first piece of material I read on Down syndrome - everything else I stayed away from because it was all so negative. <br /><br />Recently, I found Jennifer on facebook and befriended her there - what a blessing she is. <br /><br />I thank God for women like her, yourself and so many others who are willing to speak about their experiences. <br /><br />BTW, if I didn't tell you before - I love your blog and will make mention of it on my blog and facebook. <br /><br />Again, thank you.Far Above Rubieshttps://www.blogger.com/profile/05090466984173332753noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-36358393639947690102009-05-12T17:29:00.000-04:002009-05-12T17:29:00.000-04:00Sandra, thank you for this lovely, honest post. I...Sandra, thank you for this lovely, honest post. It really resonates with me. Finn's diagnosis was an after-birth surprise, and like you, a friend sent me Road Map to Holland while Finn was in the NICU. That book was like my lifeline when I felt like I was drowning in fear and sorrow.<br /><br />How absolutely wonderful that you've paid this forward the way you have. I have been thinking a lot lately about contacting my local hospitals and asking to be made a contact person for new parents receiving a diagnosis of Ds for their babies. I love the gift bag idea; I think I'm going to have to do this.Lisahttps://www.blogger.com/profile/07604477175816651214noreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-35070383609722532342009-05-12T10:56:00.000-04:002009-05-12T10:56:00.000-04:00Sandra...thank you, I was one of the lucky parents...Sandra...thank you, I was one of the lucky parents to recieve this book from you after Coco's birth. It sits next to my bed with lots of post it notes on the pages I like to refer back to. I have also since passed it along to another family.<br /><br />LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751462964274808617.post-53737928108615928752009-05-12T09:52:00.000-04:002009-05-12T09:52:00.000-04:00I love this idea! I had thought of doing somethin...I love this idea! I had thought of doing something similar with the book Gifts: Mothers Reflect on How children with Down Syndrome Enrich Their Lives and I had thought instead of having them offered to expectant mothers who have an ultrasound or amnio diagnosis in the hopes that they wouldn't abort. But I didn't think I could just waltz into the hospital and ask them to do that...maybe it is that simple. I still have yet to read Roadmap to Holland but now you make me want to.<br /><br />Julie <br />(mom of Leo(Ds), 10 months)Anonymousnoreply@blogger.com